Gallery Artpost at Itty Bitty Lakes

Gallery Artpost at Itty Bitty Lakes
Our home, gallery and studios

A LITTLE PERSONAL INFO

My wife, partner and soul mate is Kay. Between us we have a rather large extended family that give our lives joy and purpose. My Mom Mary Lou Church, an activist in her own right often helps out with the gallery. My sister Dr. Cindy Parker and brother in law Dr. Steve Shapiro live and work in Baltimore but spend as much time as they can with us at Itty Bitty Lakes. They are constantly making our lives fuller. Kay has three and I have one active and one inactive wonderful children. Between us we have eight active and two inactive grandchildren ranging in age from two to almost sixteen.

Sunday, January 30, 2011

OBAMACARE TO THE RESCUE



On July first the first positive action for the 2010 health care reform bill came online. The website designed for the purpose of informing the public was sent to me and it told me I could now get insurance through the governments’ new pre-existing condition insurance called GettingUsCovered.

Federal funding for the program is being administered by Rocky Mountain Health Plans. “RMHP is an independent, not-for-profit health benefits provider that has served the health care needs of Coloradans for more than 30 years.”  According to  the RMHP website.  I had until August 15th to apply and get accepted if I wanted surgery close to September 1st. When the opportunity first came out I was skeptical I would be able to meet the premiums for an extended period of time. Another Colorado and Federal program called Cover Colorado is for the high risk population who would normally not be able to get insurance either. Both plans stipulate the applicant can not have been insured for the previous six months. Cover Colorado however could not allow surgery for the high risk condition for 6 months after signing up. I didn’t have 6 months. My cancer was so aggressive all hope would be lost if I didn’t get it stopped soonest. At the time Cover Colorado seemed to offer substantial discounts for people with low incomes. It took awhile but I finally figured the two plans were being administered by RMHP. I called and asked about it a found that yes the two plans were being handled by RMHP and that I could start with the GettingUSCovered, keep it for six months and then switch to Cover Colorado which looked significantly more affordable.

I applied, they accepted, we jumped through a bunch of hoops getting both Denver Health Medical Center and RMHP to both admit they would and did do business with each other and voila’, I was on the road to living.

Finally, I was insured and Dr. Kim was allowed to schedule me for surgery.

Monday, January 10, 2011

A SYSTEM OH SO BROKEN

With the help of my original urologist’s staff, Kay and I applied for, were interviewed for and were accepted to be among the rarified few who have a CICP card. CICP stands for Colorado Indigent Care Program. Isn’t that something a hard working, well educated, activist citizen like me would want to be a part of -“Indigent”.

For the first 30 years of my career I only worked 90 hours a week. For the last 10 or 11 years I got lazy and slowed to first 70 hours and now only 50 or 60. One of their questions was whether I was employed or self-employed. The answer is neither. I am a sculptor.

OK I digress.

What is the Colorado Indigent Care Program (CICP)?
“The CICP provides discounted health care services to low income individuals at participating providers. CICP is not a health insurance program. The CICP is funded with federal and state dollars to partially compensate participating providers who provide health care to the uninsured and underinsured at or below 250 percent of the Federal Poverty Level. The Colorado Department of Health Care Policy and Financing administers the CICP. Health care services are provided throughout the state by hospitals and clinics that participate in the CICP. Not all hospitals and clinics participate in the program.” Colorado Department of Health Care and Financing.

Having the CICP card helps in many ways. But there are at least two reasons why it sometimes does not help at all.
First, the program is voluntary.
Second, the federal and state reimbursement levels are hideously low.

Both of these reasons factored strongly into my story.  As we were not overly thrilled with the guidance (or lack thereof) of my first urologist, it was pretty easy for us to look further upon learning he did not accept the CICP card (even though his people helped us get it). We were also a bit nonplussed with the local hospital in Canon City. Although they did accept CICP they did not have the facilities or equipment to even do the biopsy, I was not letting them anywhere near my prostate.

Extensive research took us to University Hospital in Denver. They not only accepted CICP they were the primary CICP hospital in the state. They also were one of the top prostate cancer hospitals in the nation and their Chief Urologist is supposed to be the number one prostate surgeon in the country. We had all of my records sent to University for evaluation.

Their response was swift when we called, “You have been denied. There is no appeal.”

After that shock dulled a bit we got back to work. My sister, Dr. Cindy Parker is on the faculty of Johns Hopkins Hospital in Baltimore. Cindy was trying to find somewhere we might have an edge. She remembered we have a cousin who is the Chief Cardiologist at Denver Health Medical Center. Then she checked the credentials of the Chief Urologist, Dr. Fernando Kim, and found not only was he cutting edge in the field with his doctorate at San Paula, Brazil, and his residency at Loyola, but his specialty training in urology was –yes you guessed it- Johns Hopkins.

Cindy immediately called me and told me to call Dr. Kim’s office.  I did, left a message and waited for some secretary to call me back. A short while later while in the middle of finding change for a gallery customer the phone rang. Harried and distracted I answered.

 “This is Dr. Kim calling. Is this Robert Parker?”  The Chief Urologist was calling me personally? Wow. Only problem was I was in the middle of a sales transaction with a customer and could not talk. I explained and apologized and he actually called me back shortly thereafter. I was hooked.

Dr. Kim immediately accepted me. After questioning extensively he told me he wanted to do Cryosurgery on me and freeze the prostate twice to 40 degrees below zero. In the same operation he would laproscopically remove my lymph nodes. He immediately scheduled me for the next week and we were set. This is cutting edge with an excellent history of results. His surgery would, if not cure me, give me a much longer and better quality of life.
Kay and Cindy, and the rest of the family and I were way happy

The following statements are written in the Denver Health  Medical Center’s Mission Statement:
“Welcome to Denver Health
Denver Health is Colorado's primary “safety net” institution, providing billions of care for the uninsured; Provide access to the highest quality health care, whether for prevention, or acute and chronic diseases regardless of ability to pay; Provide life-saving emergency medicine and trauma services to Denver and the Rocky Mountain region.”

Denver Health Medical Center not only takes CICP but Dr. Kim is on salary and he had already accepted me.  WRONG!  Once Financial Office thought about it for a couple of minutes they too decided to reject us. Their reason was that I did not live in Denver County even though CICP is a Colorado state program. They decided they would charge me $27,400.00 for the surgery. They wanted $16,000 down and the rest in a year. However reasonable in medical terms this was, it still was a huge out of pocket expense for us. Remember we have qualified as medical indigents. My sister, Dr. Cindy Parker who is a faculty member at Johns Hopkins University, called the administration and worked her way up through the ranks until she was able to talk with a leading administrator. They discussed my case for awhile and the administrator who is a compassionate and reasonable man agreed to lower the price to $17,810.00. He wanted $4,000.00 down and the rest in a year and a half. This was wonderful news. The cost was still terribly high for us but do-able. With the help of family and friends and by selling our car we could do it! The next day, Friday July 30, I talked to the administrator’s assistant and agreed formally to their terms.
 An hour later another person called and told me I was being rejected from care. The time was 5:30 PM, half hour after closing on Friday.
 Every professional bureaucrat we know told us this had to be a simple error and we should still go to Denver for our consultation Monday morning.
 Upon arrival we could tell bureaucratic alarm bells were going off all over. People were amazed we hadn’t gone off to die quietly.  We were shuffled off to the, Director of Ambulatory Care who was sent to deal with us.  She told us the administrator had not followed process. She repeatedly told us this was not personal, it was a process issue. 
 A Doctor was the man responsible for canceling us. His title is Director of out of county CICP Services. His job description is to deny all out of County CICP cases. (Really –I didn’t make this up).
 While we were talking with the Ambulatory Care Director and she was pretending an agreement had never been made, a secretary entered the room and handed me some papers. The top sheet was my contract, all typed up and ready for me to sign. The Director literally ripped the contract from my hands and said “You can’t have this!”
 We were then told the hospital would take us under consideration and we would be notified in 24 to 48 hours.
 The out of county director called my sister and told her he was putting the kibosh on the whole thing because it might be against the law to accept money from a CICP patient. So they wouldn’t accept me as a CICP patient because I live out of county, and they would not accept payment from me because I have a CICP card. These people are doctors, professional hospital business people, maybe lawyers and social workers. These people have all of this education and talent yet they cannot figure a way to give one person a life saving or life extending operation—even if he had found a way to pay almost $18,000 for it?
 Throughout all of this we met many folks who really wanted to help us, but as they all said, the system is broken and their hands are tied.  The system is indeed broken and because of it our lives were being jerked out of our hands.  It’s wrong.  It’s really wrong when a hospital whose mission statement is to treat the uninsured in the Rocky Mountain Region, makes a verbal agreement with us and then one man crosses us off.  We worked hard all our lives and deserve good medical care which we were not asking for free.  We were greatly disheartened.
And then came Obamacare!

Wednesday, January 5, 2011

“Let Freedom Work” is already making them squirm.


First off I want to thank my friend Susan Mayfield who forwarded excerpts of this Blog to both The Daily Kos and to Blackwaterdog. The more of us who speak out and the more of us who listen to our stories of lives being saved and lives being improved because of Obamacare, the better the chances of Obamacare continuing and growing  to eventually be the healthcare system this country so desperately needs.

I was planning on writing more about our personal story with the broken healthcare system and more about Obamacare. However some interesting developments happened today I wish to share.

This afternoon Kay and I attended the steering committee meeting for Let Freedom Work. We will soon be a 501c3. This is the umbrella organization for our new soon to be community radio station and for our series of newspaper columns discussing the facts of Obamacare and how people already are benefiting (as in lives being saved). The meeting was inspiring and our group is committed to bringing a factual and progressive view to the citizens of at least two counties in Central Colorado that have as of now very little access to any news other than news presented from the viewpoint and censorship of far rightwing newspapers and radio stations.

Our most illustrious member, Gloria Stultz, (Citizen of the Year in Canon City, 2010) presented a proposal to the Canon City Daily Record to write a monthly column discussing the factual benefits of the new healthcare law and how citizens can and will get new and better healthcare that will both save lives and improve lifestyles of the people of Central Colorado.

The following was the new paper’s response:
“I'd be more interested in us doing a story rather than running a column. I understand the articles may be intended to be informative and not with political undertones, but running an ongoing series will likely cause some to think we are endorsing it and promoting it. The issue itself greatly was divided along party lines, so I know running that regularly would cause a stir.

What if you get with Carie Canterbury about the person you know with the pre-existing condition and he can talk to us about how he is going to benefit from this? I think that would be great for our paper.”
Michael Alcala  Managing Editor

The above would be a reasonable response except that virtually every article in the paper is slanted way, way to the right. The paper actually wants to work towards condemning, destroying and repealing Obamacare. Oh and did I mention they desperately want their readers ignorant of any and all of the new healthcare benefits even if it bankrupts or kills those readers?

Our next step is to buy the space as an ad and write our column in that.  We have no problem with paying for the right to write, after all the newspaper does need to make a living. I do hope though they do not attempt to continue to block us.

Here is a personal update---- I received the results of my three month PSA test yesterday. Before my surgery my PSA level was over 18. That meant rampant cancer in my prostate and probably out of my prostate. My PSA level now is less than .13 (notice the point is before the numbers). WOOHOO!!!